Epilepsy Page 2

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Page 1 Seing someone elses fit Driving me mad What are my fits like now I want to finish with

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Seing someone else fit

A strange thing happened to me in February 2001 I saw someone have a fit I have seen my friend have one about 7 years
ago before I knew I had it. This was different I was in a club having a laugh bit drunk normal night out. Then I looked round to see a crowd round a girl she was fitting I was shocked everyone having a look a laugh. I started to cry the bouncers had come and were holding her down they were doing everything wrong. I was with a friend of mine who had been on a first aid course she knew they were doing wrong ran up to them and they wouldn't listen to her. She tried to help but they didn't let her they did what they though they had to do not what you have to do bouncers are not trained in first aid so don't count on them.
I went to the toilet and cried this is what i looked like I thought this is what people think it's a show to them and if I had a fit in that club that is the way I would have been treated. I can't understand it no one knows what to do.

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Driving me mad?

It has been a few years since I had a fit and I still take tablets every day but my Epilepsy is controlled and because of this it means I can learn to drive. I was talking about learning to drive at work and a girl there has just passed her test this is what she said "So you could just have a fit and kill people you could kill me. I don't think you should learn to drive you shouldn't be aloud to."
She talked to me like I was meat and she didn't understand at all I tried to explain about my Epilepsy being
controlled but she wouldn't listen. If she talked to my face like that what can she be saying behind my back.
It drives me mad I was thinking about not driving but why should I let her do that to me I know I am ready and I know I should at least fill in the papers to see if I am allowed. There are so many jobs where you need to drive now and I need to learn these skills I need to take control of my life I am not a person with Epilepsy I am a person.

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So what's it like now

My last fit I havn't been getting fits really but about 6 months ago then in June 2003 I was going to met some friends in Manchester and I decided to have a Shower before I went. I had a fit just as I was getting out. I must have come round about 5 mins later. I didn't really know what had happened I was in my dressing grown in the bath and the shower curtain was on the floor. I think that I must have fallen forward before I left the bathroom. I went upstairs to bed for about a hour I was very confused. I later worked out what had happened still confused I was sat in the train station waiting for my train when my friend phoned me I was meant to be there by then but I had not realised so I had I was going to be a hour late I had got all confused. I thought it was a hour later meeting than at that time. When I met my friends I explained what had happened and they were ok with me. Thing is I had been working really hard that week and had not realised that I need some more tablets so I had not had time to get some more from the docotrs. I had cut down my doses so that they would last me to Monday. Of course it had not worked and I had a fit. This made me realise that maybe I will never be able to come off these tablets that maybe this is it forever. Yes It upset me but it's something I have to deal with as I deal with this every day.

It's now Jan 2008 and as far as I am awre I have not had a fit for years sometimes I get tired and stressed and I feel headaches but nothing has happened. That makes me happy in a way but I still have to take my tablets every day.

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I want to finish with

Please think when people tell you they have Epilesy they are not stupid they are people don't treat them different, if you touch them they won't

fall down dead. I am an normal person I just have something no one understands.

Here is a couple of links so you can find out more information

The Epicentre
UK Epilepsy Orgainstion

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